A costly hope: The financial burden of a rare genetic disease in India
Rohit and Anshuma Rastogi have been spending lakhs every year to keep their children alive. Their son and daughter, Akshat and Roli, were born with a genetic disease called Spinal Muscular Atrophy (SMA), which causes muscle weakness and atrophy, as well as a severely weakened immune system. This occurs due to the loss of motor … Read more