A costly hope: The financial burden of a rare genetic disease in India

Rohit and Anshuma Rastogi have been spending lakhs every year to keep their children alive. Their son and daughter, Akshat and Roli, were born with a genetic disease called Spinal Muscular Atrophy (SMA), which causes muscle weakness and atrophy, as well as a severely weakened immune system. This occurs due to the loss of motor … Read more

Dementia: Genetic causes, lifestyle risks and care strategies

Last week, we explored the complications of dementia, focusing on its effects on memory and cognitive function, as well as the importance of early detection. I also shared how music therapy can positively impact cognitive function, illustrated by a story of a senior citizen with dementia, which went viral. This week, we will continue that … Read more

The government is scrambling to control the ‘Wild West’ of genetic testing and insurers

Requiring someone to take a test can also have a big impact on their life. Are they likely to develop a life-threatening disease later in life? Would having this knowledge affect how they live? And what would this mean for their family members, who may know – through no choice of their own – they … Read more